Newsletters

Contents for Spring 2001 “On Guard” Newsletter


Family Council Battles for Visitation Rights

FRIA in the News

Ask FRIA

Dreams Come True


Legislation

Family Council Battles for Visitation Rights

The Department of Health (DOH) recently cited Dry Harbor Nursing Home because it had illegally restricted visits by the Family Council President, Gerald Kozicki, to his mother, a resident of the home. He was permitted to visit only his mother, and only in her room and could no longer share meals in the dining rooms or regular recreational activities He was barred altogether from interaction with other residents he regularly visited, despite specific written permission from 15 residents or their relatives.

Mr. Kozicki learned of the restrictions in a letter from Dry Harbor's administrator that he received late Friday afternoon before Christmas. The reasons for the restriction, denied by Mr. Kozicki, were general in nature, and did not refer to any specific incidents.

The Dry Harbor Family Council includes many relatives and friends of residents who, like Mr. Kozicki, visit the home frequently, socialize with each other and make a point of visiting not only with their own relatives, but also with many other residents. While the Family Council's relationship with administration has been sometimes strained, the results of their efforts have clearly benefited the residents. Examples of their success include getting the floor of the recreation and dining room replaced with new tiles because the old ones were damaged and dangerous, getting the home to adopt a policy for bringing non-kosher food items into the nursing home, and forcing the home to increase the amount of linen and bedding in stock after the family council noted a pattern of shortage of these items.

Many family council members believe the visitation restrictions were imposed in retaliation for effective, successful leadership and are intended to frighten Mr. Kozicki and others away from advocacy activity. Because this effort to restrict visitation is one of a growing number of such instances, FRIA sought and obtained legal representation for Mr. Kozicki. A pro bono law firm provided through New York Lawyers for the Public Interest now represents the Family Council in meetings with the home and its lawyer.

After nearly six weeks, the DOH responded to the complaint made by Mr. Kozicki and FRIA with immediate restoration of full visitation rights for Mr. Kozicki.

FRIA urges DOH to strengthen visitation rights.

Joined by the Nursing Home Community Coalition (NHCC) of New York State, Alzheimer's Association- New York City Chapter, Coalition of Aged and Disabled (CIAD), and Pride Senior Network, FRIA has asked DOH to clarify the regulations that protect visitation rights. The groups urge that visitations restrictions

be allowed only when there is danger to others
be limited to least restrictions necessary
be time limited with an obligation to work toward removing them
be prohibited when the problem is staff/visitor conflict
be based on specific incidents and behavior with an opportunity to rebut.

In addition, the groups have asked that state policy should encourage nursing homes to open themselves to the community, especially to residents' neighbors and friends, to "friendly visitor" groups and volunteers. Although residents with dementia cannot legally consent or object to particular visits, nursing homes should be required to facilitate visits that enhance their quality of life and do not distress or harm them. Inability to consent should not result in further isolation and limited opportunities for interaction.

NEW YORK STATE NURSING HOME
REGULATIONS ON VISITATIONS

NYCRR Title 10 Section 415.3
(2) With respect to its responsibilities to the resident the facility shall:

(iv) provide immediate access to any resident by the following:

(f) immediate family or other relatives of the resident, subject to the resident's right to deny or withdraw consent at any time, and
(g) others who are visiting with the consent of the resident, subject to reasonable restrictions and the resident's right to deny or withdraw consent at any time

FRIA in the News

FRIA Families and Staff spoke out recently:

  • On nursing home conditions in a number of Daily News articles
  • On inadequate staffing and state oversight at New York Assembly hearings
  • On nursing home issues in an interview for a television piece on NY 1
  • On various community concerns in several editions of the Newsday column "Grey Matters"
  • On end-of-life issues on a local follow-up to the Bill Moyers television special
  • On assisted living in a New York Times article
  • On family council topics in Bronx and Queens local papers
  • On Department of Health enforcement issues

Thank you to all those who shared your personal experiences with the public so that others could be made aware of the importance of long- term care issues.

 

 

Ask FRIA

Q. My mother's nursing home is suggesting she become a member of Evercare. What is Evercare and should she join?

A. Evercare is a Health Maintenance Organization (HMO) for residents of nursing homes. It is an experimental program that is now being offered in only a few homes in New York. The plan intends to decrease hospitalizations and emphasize prevention through frequent visits by nurse practitioner/ physician teams.

To participate, residents must receive Medicare Parts A and B. Medicare funds are used for the nurse practitioner and doctor teams. The teams are permitted to offer in the nursing home some medical care that traditional Medicare allows only in a hospital.

Because it is an HMO, participants will be limited to Evercare's provider network. However, Evercare states that no one joining initially will have to change doctors or hospitals.

Evercare's rules generally follow those for other Medicare Plus Choice plans. If your mother changes her mind after signing up, she can disenroll and move back to traditional Medicare at any time. In the future, switching back to traditional Medicare may be more difficult and take longer.

Evercare is new to New York and few consumers have experience using it. However, FRIA received positive feedback about the Evercare program when we spoke to consumer advocates in other states where it has existed longer.

Remember, whether to enroll in Evercare is your family's choice. Ask as many questions as necessary and do not feel pressured into enrolling if you are not comfortable. As always, you can call FRIA's hotline, (212) 732-4455 , Monday, Wednesday and Fridays, if you have any questions.

Dreams Can Come True!
  • A resident in a nursing home on Staten Island stays up-to-date with his granddaughter in Texas via internet "chats".

  • Residents in a facility in Manhattan can awake leisurely and have breakfast on their own schedule.

  • Families and staff at a nursing home in Brooklyn have been trained to give relaxing hand massages to residents.

  • Residents with Alzheimer's disease who were formerly labeled "behavioral problems" in a nursing home in Brooklyn now participate in a daily, eight hour program of conversation, songs, games, cooking, and current events trivia.

Dream big, and anything is possible. These types of best practice programs really do exist in nursing homes. With your participation and commitment in bringing best practices to nursing homes we can make the dream a reality. Contact Cris Parque to join others in this movement or to receive a copy of FRIA's new "Best Practices" poster.

Legislation

STAFFING BILL MOVING IN ALBANY!
The New York State Safe Staffing Bill has been re-introduced into the Assembly (A. 4171) by Health Committee Chair, Dick Gottfried and his counterpart in the Senate, Kemp Hannon (S.2185). It's crucial at this time that they get additional sponsors.

The Safe Staffing Bill requires nursing homes to meet state mandated minimum ratios of certified nursing assistants and nurses to residents. Currently the state regulations only require there be "adequate" staffing, which is a big loophole for nursing homes to save money and endanger residents by understaffing.

You can help:

Complete a Safe Staffing postcard asking your legislator to support the bill, or complete a "Tell My Story" form, which asks you to write a few lines about how understaffing has impacted the care you or your loved one has received in a nursing home. These stories are being delivered to the legislators, one each week, in an effort to draw attention to this important issue. Postcards and "Tell My Story" forms are available from FRIA on our website.


FAMILY HEALTH CARE DECISION MAKING ACT - RIGHTS FOR PATIENTS WHO CAN'T ACT THEMSELVES
In most states, "next of kin" have a legal right to get health treatment for incapacitated relatives who can't speak for themselves. In New York, families do not have this right. They can be excluded from healthcare decisions and refused information about care of their relatives.

The Family Health Care Decision Making Act (A5523) would give families this precious right to act on behalf of close relatives. This act would ensure that relatives could monitor care in nursing homes-by seeing medical records, for example and would enable families to make sure relatives are allowed to die as desired --without feeding tubes or ventilators, for example. Consumers and providers alike want to see this enacted into law in New York.

Go to www.familydecisions.org for more information on this legislation.


ASSISTED LIVING - THE TIME HAS COME FOR LICENSING
Although upscale assisted living facilities are thriving in New York, they are not held to the licensing standards of all other residential health care facilities in the state. The Governor is unlikely to introduce a bill requiring licensing unless consumers pressure him to act.

Call or write New York State legislators and Governor Pataki and ask them to support the Safe Staffing Bill, the Family Health Care Decision Making Act and to introduce legislation to create assisted living standards.

To find out who your elected officials are, visit the New York Public Interest Research Group's (NYPIRG) website at www.cmap.nypirg.org/webmaps/MyGovernmentNYC.htm or call the League of Women Voters at 212-674-8484